Office of Research on Women's Health (ORWH)
ME/CFS Workshops and Conferences
Pathways to Prevention (P2P) Workshop: Advancing the Research on ME/CFS
The 2014 Pathways to Prevention Workshop: Advancing the Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome sought to clarify:
- How the research on ME/CFS using multiple case definitions has contributed to the state of the current scientific literature on diagnosis, pathophysiology, treatment, cure, and prevention of ME/CFS.
- How the measurement outcomes (tools and measures) currently used by researchers of ME/CFS are able to distinguish among those patients diagnosed with ME/CFS, including the sensitivity of the tools and measures to identify subsets of patients according to duration, severity, nature of the illness, onset characteristics, and other categorizations.
- How the research on treatments or therapies shown to be effective in addressing symptoms of ME/CFS will lead to an understanding of the underlying pathology associated with ME/CFS.
- How innovative research approaches have provided an understanding of the pathophysiology of ME/CFS, and how this knowledge can be applied to the development of effective and safe treatments.
Institute of Medicine Committee Meeting
An Institute of Medicine (IOM) expert committee was convened to evaluate the criteria for the diagnosis of ME/CFS, consider the existing definitions, and recommend clinical diagnostic criteria. Their report, Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness, was released in February 2015.
State of the Knowledge Workshop on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Sponsored by the NIH Office of Research on Women’s Health in collaboration with the Trans-NIH ME/CFS Research Working Group, the State of the Knowledge Workshop on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Research on April 7-8, 2011 convened 32 investigators from numerous scientific disciplines. Topics covered included infectious diseases, systems biology, immunology, neurology, exercise physiology/energy metabolism, diagnosis and biomarkers, and treatments.
The workshop goals were to:
- document what is known about the illness
- identify gaps in knowledge needing more research
- identify opportunities in science and technology that might advance biomedical research on ME/CFS
Day 1 (April 7, 2011) videocast: State of the Knowledge Workshop on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Research videocast
Day 2: (April 8, 2011) videocast: State of the Knowledge Workshop on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Research videocast
A letter to workshop participants and patients
from Kathleen Sebelius, Secretary of the Department of Health and Human Services, read by Dr. James Anderson, Director, NIH Division of Program Coordination, Planning, and Strategic Initiatives, in his welcoming remarks.