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Office of Research on Women’s Health (ORWH)

About the Trans-NIH ME/CFS Working Group

Established in 1999, the Trans-NIH Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Research Working Group includes representatives from NIH Institutes, Centers, and Offices within the Office of the Director, who serve as resources for ME/CFS biomedical and behavioral research. Working as a team with leadership from the National Institute of Neurological Disorders and Stroke (NINDS), the Trans-NIH ME/CFS Research Working Group identifies shared areas of interest and challenges to advancing ME/CFS research. An individual from NINDS chairs the Research Working Group. A member of the Trans-NIH ME/CFS Research Working Group serves as the ex officio representative to the Department of Health and Human Services Chronic Fatigue Syndrome Advisory Committee (CFSAC).

The Trans-NIH ME/CFS Research Working Group does not have grant-making authority and does not make research project awards. It advances ME/CFS research by providing NIH Centers, and Offices with evidence-based rationale for supporting ME/CFS research and for attracting investigators to study this complex illness.

The Trans-NIH ME/CFS Research Working Group also works to leverage resources available for ME/CFS research, such as personnel, equipment, methodology, supplies, and collaborative expert networks. By working as a team, the working group considers many ways to support ME/CFS projects that may not otherwise be identified.

Trans-NIH ME/CFS Research Working Group Goals

  • Advance research on the etiology, prevention, diagnosis, pathophysiology and treatment of ME/CFS
  • Encourage biomedical research investigators and organizations to study ME/CFS
  • Communicate ME/CFS research information among and between NIH ICs and the Office of the Director
This page last reviewed on October 29, 2015